Cameron's mom
Cameron is now four years old and was born with severe aortic stenosis
which is a blockage of the aortic valve. After a normal pregnancy, Cameron
was diagnosed a day and a half after he was born, had his first balloon
dilation of his aortic valve in the cardiac catheterization lab at two days old,
and had a second balloon dilation at 3 mos. old. Cameron was also diagnosed
with other left sided heart defects, sub-aortic stenosis and mild mitral stenosis, and he has a narrow transverse arch and a unicuspid aortic valve. Cameron is seen by his cardiologist at Children’s every six months for an echocardiogram. His aortic valve blockage remains moderate and we hope this will continue with no lifestyle restrictions for a long time to come. Cameron will at least need replacement of his aortic valve. Presently there are no good replacement options for small children who’s hearts and bodies are still growing. We believe that some day medical technology will be able to grow aortic valves with a patient’s own DNA and implant it via the catheter. The only question for us is whether this medical technology will happen soon enough to provide Cameron with such a safe, noninvasive and least life restrictive procedure.
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age 4
tricuspid atresia
